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I don’t always know how to answer when people ask ”how are your eyes?”
[originally posted on (S)lightly Disabled] Having an invisible disability or chronic illness often means a lot of things get left unsaid when you interact with others – friends, acquaintences, co-workers, even people you love. Sometimes it’s about not wanting to “kill the vibe” or be a burden. Sometimes it’s about internalized guilt or even internalized…
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What I’m up to
I’m going back to school to study accessibility. I just thought i would bring it up when I talk about “classes” or whatever. I decided that I wanted to get educated in web accessibility/accessible design last year when I had yet another meltdown about how hard it can be to do my computer-based job with…
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Flying Blind: Epilogue … and a beginning
So I’m back from my travels, still recovering from switching time zones and settling back into Chicago life. I’ve been really emotional for the past couple of days, partially being emo about the end of three weeks of fun, but also out of gratitude for everything I’ve experienced. Here it all is in a Tweetstorm I…
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Flying Blind: Traveling Internationally with Keratoconus
So, I’m back from Tokyo and it was an AWESOME trip. If you want to see pics, they’re on my Instagram, but I wanted to talk a bit about my experience traveling with Keratoconus. I was really nervous about doing this kind of travel for many years because I’ve had a couple of scary experiences…
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Flying Blind: Best Laid Plans
So I was supposed to get my glasses today so I can take my long trip with minimal risk of eye infection drama. (Reminder: without my special contacts my vision is very badly impaired, so eye infections limit my mobility.) Well, the person at LensCrafters messed up the prescription on my left lens so my…
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Flying Blind: The Adventure (Almost) Begins
It’s a week and a half before I go to Tokyo. It’s the first international trip I’ve taken since my Keratoconus got worse and started to disrupt my daily life, so I’ve been a bit nervous about the trip. OK, I’m understating things. I’ve been lowkey panicking about the trip even before I booked it,…
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The Show Must Go On
I wanted to share a quick story about something that happened to me the other day that is a lesson on how life with a chronic illness or disability is both normal and abnormal and how you learn to live with that fact and carry on. I did a reading at a live lit event called Tuesday…
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What I’m Up To In The Next Couple of Weeks
Trying to start the new year off with a bang to keep myself distracted from freaking out over the impending loss of health insurance and other pressing issues. I’ll be out and about, talking and hosting so please come check me out. On Tuesday, January 24th I’ll be co-hosting a post-inauguration discussion and lecture…
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It’s World Keratoconus Day
Today is the first ever World Keratoconus Day!.You can follow the hashtag #WorldKCday on Twitter to see how people are commemorating the day. Keratoconus is a degenerative eye condition in which the normally round dome-shaped cornea progressively thins, causing a cone-like bulge to develop. This results in significant visual impairment. You can check out more…
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What I’ve been up to: Fall edition
When people at cocktail parties or whatever ask me “what have you been up to?” and I say “oh not much,” usually I am lying. I am just bad at talking about myself, and/or my brain is so focused on whatever I am doing at the moment, I forgot all the other stuff. I have…
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Keidra Chaney 