Category: KCdiaries
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An open letter to the NKCF
A letter that I sent to the National Keratoconus Foundation about something that’s been on my mind lately. My name is Keidra Chaney, I am a Keratoconus patient and proud donor to the National Keratoconus Foundation. I’d like to thank NKCF for your continuing work in raising greater awareness and understanding of Keratoconus for doctors,…
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What I’m up to
I’m going back to school to study accessibility. I just thought i would bring it up when I talk about “classes” or whatever. I decided that I wanted to get educated in web accessibility/accessible design last year when I had yet another meltdown about how hard it can be to do my computer-based job with…
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Flying Blind: Epilogue … and a beginning
So I’m back from my travels, still recovering from switching time zones and settling back into Chicago life. I’ve been really emotional for the past couple of days, partially being emo about the end of three weeks of fun, but also out of gratitude for everything I’ve experienced. Here it all is in a Tweetstorm I…
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Flying Blind: Traveling Internationally with Keratoconus
So, I’m back from Tokyo and it was an AWESOME trip. If you want to see pics, they’re on my Instagram, but I wanted to talk a bit about my experience traveling with Keratoconus. I was really nervous about doing this kind of travel for many years because I’ve had a couple of scary experiences…
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Flying Blind: Best Laid Plans
So I was supposed to get my glasses today so I can take my long trip with minimal risk of eye infection drama. (Reminder: without my special contacts my vision is very badly impaired, so eye infections limit my mobility.) Well, the person at LensCrafters messed up the prescription on my left lens so my…
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Flying Blind: The Adventure (Almost) Begins
It’s a week and a half before I go to Tokyo. It’s the first international trip I’ve taken since my Keratoconus got worse and started to disrupt my daily life, so I’ve been a bit nervous about the trip. OK, I’m understating things. I’ve been lowkey panicking about the trip even before I booked it,…
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The Show Must Go On
I wanted to share a quick story about something that happened to me the other day that is a lesson on how life with a chronic illness or disability is both normal and abnormal and how you learn to live with that fact and carry on. I did a reading at a live lit event called Tuesday…
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It’s World Keratoconus Day
Today is the first ever World Keratoconus Day!.You can follow the hashtag #WorldKCday on Twitter to see how people are commemorating the day. Keratoconus is a degenerative eye condition in which the normally round dome-shaped cornea progressively thins, causing a cone-like bulge to develop. This results in significant visual impairment. You can check out more…
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What Do I Want?
Note: 20 x 2 is a twice yearly event where 20 people across different walks of life and disciplines are invited to answer a question in their own unique way: Here’s how I answered the question “What Do I Want?” last Saturday for the event.(One of my songs was also playing in the back) So, for the…
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Mental Health Is Health
Today is World Mental Health Day and I just wanted to write a short post about the importance of opening up and talking about mental health issues. We live in a society where people are encouraged to “suck it up” when it comes to depression, anxiety and other mental health issues. And I’ve found that even…
Keidra Chaney 